Myerodysplastic Syndromes (MDS)
Aplastic Anemia and MDS International Foundation
The Aplastic Anemia and MDS International Foundation is the world’s leading nonprofit health organization dedicated to patients afflicted with bone marrow failure disease.
Myelodysplastic Syndromes (MDS) Foundation
The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS.
Cooley’s Anemia Foundation
The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s Anemia/Thalassemia Major.
Thalassaemia International Federation (TIF)
The Thalassaemia International Federation (TIF) is a non-profit, non-governmental organization founded in 1986 by a small group of patients and parents in Greece, the UK, U.S., and Italy.
MPN Advocacy & Education International
MPN Advocacy and Education International is dedicated to providing the knowledge, support, and resources patients need as they adjust to living with an MPN through educational symposia in several cities each year, website access, free webcasts of each program, collateral materials, and direction to people, resources and other organizations that can help.
MPN Research Foundation
The mission of the MPN Research Foundation is to stimulate original research in pursuit of new treatments — and eventually a cure — for the blood cancers polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN).
Pulmonary Arterial Hypertension (PAH)
Pulmonary Hypertension Association (PHA)
PHA is a nonprofit organization that relies on donations to fund its many programs, including the nation’s largest PH patient and caregiver support group network, lifesaving early diagnosis awareness and education programs, specialty care resources, and research to find ways to prevent and cure PH.
Charcot-Marie-Tooth Disease (CMT)
Charcot-Marie-Tooth Association (CMTA)
CMTA’s mission is to support the development of new drugs to treat CMT, to improve the quality of life for people with CMT, and ultimately, to find a cure.
Hereditary Neuropathy Foundation (HNF)
Hereditary Neuropathy Foundation (HNF) is a non-profit organization with a mission to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families with critical information to improve quality of life, and fund research that will lead to treatments and cures.