Head Title: Patients
Our Promise to Patients

Patients

Patient Advocacy

Myelodysplastic Syndromes (MDS)

Beta-thalassemia

  • Cooley’s Anemia Foundation
    Cooley’s Anemia Foundation

    The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s Anemia/Thalassemia Major.

  • Thalassaemia International Federation (TIF)
    Thalassaemia International Federation (TIF)

    The Thalassaemia International Federation (TIF) is a non-profit, non-governmental organization founded in 1986 by a small group of patients and parents in Greece, the UK, U.S., and Italy.

Myelofibrosis

  • MPN Advocacy & Education International
    MPN Advocacy & Education International

    MPN Advocacy and Education International is dedicated to providing the knowledge, support, and resources patients need as they adjust to living with an MPN through educational symposia in several cities each year, website access, free webcasts of each program, collateral materials, and direction to people, resources and other organizations that can help.

  • MPN Research Foundation
    MPN Research Foundation

    The mission of the MPN Research Foundation is to stimulate original research in pursuit of new treatments — and eventually a cure — for the blood cancers polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN).

Facioscapulohumeral Muscular Dystrophy (FSHD)

  • FSH Society
    FSH Society

    The FSH Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.

  • Muscular Dystrophy Association (MDA)
    Muscular Dystrophy Association (MDA)

    MDA is leading the fight to free individuals — and the families who love them — from the harm of muscular dystrophy, ALS and related muscle-debilitating diseases that take away physical strength, independence and life.

Charcot-Marie-Tooth Disease (CMT)

  • Charcot-Marie-Tooth Association (CMTA)
    Charcot-Marie-Tooth Association (CMTA)

    CMTA’s mission is to support the development of new drugs to treat CMT, to improve the quality of life for people with CMT, and ultimately, to find a cure.

  • Hereditary Neuropathy Foundation (HNF)
    Hereditary Neuropathy Foundation (HNF)

    Hereditary Neuropathy Foundation (HNF) is a non-profit organization with a mission to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families with critical information to improve quality of life, and fund research that will lead to treatments and cures.

Pulmonary Arterial Hypertension (PAH)

  • Pulmonary Hypertension Association (PHA)
    Pulmonary Hypertension Association (PHA)

    PHA is a nonprofit organization that relies on donations to fund its many programs, including the nation’s largest PH patient and caregiver support group network, lifesaving early diagnosis awareness and education programs, specialty care resources, and research to find ways to prevent and cure PH.