Patients
More Than Rare

At Acceleron, we say that patients are our “North Star.” While our mission is focused on addressing rare diseases to improve the lives of patients and their caregivers, we know that these individuals are defined by much more than their symptoms, limitations, or treatments.

We would like to introduce you to a few people who, despite all being part of the rare disease community, have unique backgrounds and stories to share. They are More Than Rare.

Pulmonary Arterial Hypertension

  • Meet Nola

    Meet Nola

    Meet Nola, a friend, an awesome aunt, a sister, and a woman who lives with PAH.

  • Meet Alex

    Meet Alex, a son, a brother, a missionary, and a caregiver for his father with PAH.

  • Meet Perry - More Than Rare

    Meet Perry

    Meet Perry, a gardener, an ametuer DIY handyman, a dog owner, and a man who lives with PAH.

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Myelodysplastic Syndromes

  • Meet Alissa

    Meet Alissa

    Meet Alissa, a wife, a daughter, a patient advocate, and a caregiver for her father with MDS.

  • Meet Len

    Meet Len

    Meet Len, a husband, a medical director of a consumer company, and a man who lives with MDS.

  • Meet Gerald

    Meet Gerald

    Meet Gerald, a father, a grandfather, a happy-go-luck guy, and a man who lives with MDS.

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BETA-THALASSEMIA

  • Meet Harpreet

    Meet Harpreet, a teacher, a father, and a caregiver for his son with beta-thalassemia.

  • Meet Yasmeen

    Meet Yasmeen

    Meet Yasmeen, a teacher, a daughter, and a woman who lives with beta-thalassemia.

  • More Than Rare - Meet Navdeep video still

    Meet Navdeep

    Meet Navdeep, a traveler, a husband, a father, and a man who lives with beta-thalassemia.

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