Acceleron Pharma

Privacy Notice

Last updated: December 2, 2020

This Privacy Notice (“Notice”) explains how Acceleron Pharma, Inc. (“Acceleron Pharma”, “we”, “us”, or “our”) collects, uses, discloses, and otherwise processes Personal Information about you when you access or use our website located at https://acceleron.comocreative.com/, and any other website or application owned and operated by Acceleron Pharma and its affiliates that links to this Notice (collectively, the “Site”).  This document describes how Acceleron Pharma handles and protects that information, and the rights and choices available to you with respect to such information.  For purposes of this Notice, “Personal Information” means information that identifies or relates to you or your household.

To the extent permitted by applicable law, by interacting with us and providing information to us, you agree to the collection and use of your Personal Information in accordance with this Privacy Notice.

Collection of Information:  When you engage in certain activities on the Site, such as participating in surveys, contacting customer service, providing feedback, or signing up for email updates or other promotional materials, we may ask you to provide certain information about yourself.  Such information may include your name, e-mail address, telephone number, company name, company information, as well as other information. In addition, Acceleron Pharma accumulates information from Site visitors such as what Acceleron Pharma web pages you access, how often you access them, the date, time, and duration of your use of the Site, your Internet Protocol (IP) address and/or domain name, from which website you entered the Acceleron Pharma website, and your mobile carrier and/or Internet Service Provider.  We may also gather information through the use of “cookies” as described below.

Use of Cookies and Other Technologies:  Some pages on the Acceleron Pharma Site use “cookies,” or small data files that the Site places on your hard drive, for identification purposes.  Your web browser may be programmed not to accept “cookies” or it may allow you to be notified when you are receiving a “cookie,” thus giving you the option of accepting it or rejecting it.  You are free to decline our cookies if your browser permits but doing so may interfere with your use of the Site.

We and our third-party service providers may also use technologies similar to cookies to track your interaction with the Site.  Some of these technologies may include web beacons, pixels, tags, web server logs, geo-location technologies, and Flash objects.  As with cookies, you are free to decline such technologies if your browser permits.  You should refer to your browser’s instructions to remove cached history and images from your device.  Deleting or disabling cookies will not remove Flash objects.  You should refer to Adobe’s website (http://www.adobe.com) for more information on how to disable these objects.

The Site may use Google Analytics to analyze traffic.  You can find out more information about Google Analytics cookies here:  https://developers.google.com/analytics/devguides/collection/analyticsjs/cookie-usage.  To opt-out of Google Analytics relating to your use of the Site, you can download and install the Browser Plugin available via this link: https://tools.google.com/dlpage/gaoptout?hl=en.

Acceleron Pharma and the third parties who assist in operating the Site do not respond differently or limit their practices under the terms of this Notice when you access those online services with a browser that uses a do not track signal or similar mechanism.

Use of Information:  Acceleron Pharma may use the information that it gathers for the following purposes: (i) to contact you or your company to provide information, products, or services; (ii) to provide support for, promote, and improve the Site and Acceleron Pharma offerings; (iii) to customize the Site to provide content most relevant to you; (iv) to compare information for accuracy and verify our records; or (v) to detect, investigate, and prevent activities that may violate our policies or rules or that may be otherwise illegal.  Acceleron Pharma may also use the information to communicate with you, in instances such as: (i) when we make changes to our policies; (ii) to respond to your inquiries; (iii) to contact you about your account; or (iv) to send you or your company information about promotions, offerings, and other marketing materials.

Sharing of Information:  Acceleron Pharma may share and disclose your information with Acceleron Pharma’s business partners for our marketing purposes or other entities who perform services for Acceleron Pharma.  We may share your Personal Information with service providers who are authorized to use your Personal Information only as necessary to support our business operations, such as those who provide data storage, technology support and services, customer service, risk solution provision, analytics, fraud prevention, legal services, and marketing services.  We may also share some of your Personal Information as otherwise permitted or required by law or as authorized by you.  Although Acceleron Pharma makes every effort to preserve your privacy, Acceleron Pharma may need to disclose or provide access to Personal Information if Acceleron Pharma has a good faith belief that such action is necessary to comply with the law, such as in connection with a judicial proceeding, court order or other legal process.  Acceleron Pharma will not sell Personal Information, and Acceleron Pharma does not share Personal Information with unaffiliated third parties for their use for marketing purposes.  However, in the event Acceleron Pharma goes through a business transition, such as a merger or an acquisition of its equity interests or assets, or a business reorganization, your Personal Information contained or stored by Acceleron Pharma may be part of the assets transferred.

Your Rights and Choices:  Subject to applicable law, you may have the right to (a) find out what Personal Information about you has been collected, used, and shared during the past twelve months, (b) request a copy of the Personal Information that we maintain about you, (c) request

changes to or deletions of the Personal Information, and (d) request an opt-out from the marketing materials, promotions, and other emails from us.  To exercise such rights, you may email Acceleron Pharma at DPO@xlrn.com.  If you no longer want to receive third-party email offers, please follow the third party’s unsubscribe link or opt-out instructions that should be included in every commercial message you receive.

In some cases, state laws such as the California Consumer Privacy Act of 2018 require us to verify the identity of the individual submitting a request for their Personal Information before providing a substantive response to the request.  Consistent with those requirements, and because we take the privacy and security of your Personal Information seriously, we will verify your identity by asking you to provide certain information about yourself.  Once your identity is verified, we will work to provide you with your requested information in a timely manner.  If you choose to empower an “authorized agent” to submit requests on your behalf, we will require the authorized agent to have a written authorization confirming that authority.

Some Internet browsers may be configured to send “Do Not Track” signals to the online services that you visit.  We currently do not respond to “Do Not Track” or similar signals.  To find out more about “Do Not Track,” please visit http://www.allaboutdnt.com.

Job Applicants:  When you visit the “Careers” portion of our website, we collect the information that you provide to us in connection with your job application.  This includes personal contact information, professional credentials and skills, educational and work history, social media profiles, and other information that may be included in a resume.  We use this information to facilitate our recruitment activities and process employment applications.  We may also use this information to operate and improve our websites, to communicate with you, and as otherwise provided in this Notice.

Security:  We use commercially sound efforts to maintain administrative, technical, and physical safeguards that are designed to protect the privacy and security of Personal Information.  Please note that we cannot guarantee the security of our databases or Site, nor can we guarantee that information will not be intercepted while being transmitted over the Internet.

Children Under 13:  The Site is not intended for use by children, especially those under the age of 13.  We do not knowingly collect Personal Information from children under the age of 13 (“Child”) through the Site.  If you are a parent or guardian and you learn that your Child has provided us with Personal Information, please contact us.  If we discover that a Child has provided us with Personal Information, we will take reasonable steps to delete such information from our servers.

Other Sites and Services:  We may provide links to other websites and online services operated by third parties, such as LinkedIn or Twitter.  These links are not an endorsement of, or representation that we are affiliated with, any third party.  In addition, our content may be

included on web pages or in mobile applications or online services that are not associated with us.  We do not control third party websites, mobile applications or online services, and we are not responsible for the privacy practices of these third parties.  Other websites and services follow different rules regarding the collection, use and sharing of your Personal Information.  We encourage you to read the privacy policies and terms of use of the other websites, mobile applications and online services you use.

Changes to this Privacy Notice:  Acceleron Pharma reserves the right, at our discretion, to change, modify, add, or remove portions of this Privacy Notice at any time by posting the amended Privacy Notice on the Site.  You should review this Notice periodically, and especially before you provide any Personal Information.  Your continued use of the Site after we post any modifications to the Privacy Notice will constitute your acknowledgment of the modifications and your consent to our privacy practices as described in the modifications.  If we decide to use particular information collected about you in a manner materially different from that stated at the time it was collected, we will let you know through the Site, by email, or other communication.

Nevada Privacy Rights

Although we do not currently conduct sales of Personal Information, Nevada residents may submit a request directing us to not sell Personal Information we maintain about them if our practices change in the future.

To exercise this right, please contact us by e-mail at DPO@xlrn.com

California Privacy Rights

This section contains disclosures required by the California Consumer Privacy Act (“CCPA”) and applies only to “Personal Information” that is subject to the CCPA.

Personal Information We Collect.  We collect the categories of Personal Information about California consumers identified in the chart below.  As further set forth in the chart below, in the past 12 months, we have disclosed California consumers’ Personal Information to third parties for business or commercial purposes.  Please note that we do not “sell” Personal Information for monetary or other valuable consideration, including the personal information of minors under 16 years of age.

Categories of Personal Information Collected in the last 12 months:Categories of sources from which information is collected:Business or commercial purposes for collection, use, and sharing:Disclosed for business purposes to the following categories of third parties:
Personal and online identifiers (such as first and last name, email address, or unique online identifiers)YesAll categories listed below.All purposes listed below.All categories listed below.
Categories of information described in Section 1798.80(e) of the California Civil Code (such as physical characteristics or description, insurance policy number, bank account number, credit card number, debit card number, or any other financial information, medical information, or health insurance information)NoAll categories listed below.All purposes listed below.All categories listed below.
Characteristics of protected classifications under California or federal law (such as race or gender)NoAll categories listed below.All purposes listed below.All categories listed below.
Commercial or transactions information (such as records of personal property or products or services purchased, obtained or considered)NoAll categories listed below.All purposes listed below.All categories listed below.
Internet or other electronic network activity information (such as browsing history, search history, interactions with a website, email, application, or advertisement)YesAll categories listed below.All purposes listed below.All categories listed below.
Biometric information (such as call recordings)NoAll categories listed below.All purposes listed below.All categories listed below.
Geolocation informationNoAll categories listed below.All purposes listed below.All categories listed below.
Sensory information (such as audio, electronic, visual, thermal, olfactory, or similar information)NoAll categories listed below.All purposes listed below.All categories listed below.
Professional or employment-related informationNoAll categories listed below.All purposes listed below.All categories listed below.
Education informationNoAll categories listed below.All purposes listed below.All categories listed below.
Inferences drawn from the above information about your predicted characteristics and preferencesNoAll categories listed below.All purposes listed below.All categories listed below.
Other information about you that is linked to the Personal Information aboveYesAll categories listed below.All purposes listed below.All categories listed below.

Categories of Sources.  We may collect this Personal Information from the following categories of sources:

  • Consumers;
  • Service providers;
  • Third parties with whom you associate (such as social media networks if you use those to link to the Site); and
  • Affiliates not under the Acceleron Pharma brand.

Why We Collect, Use, and Share California Information.  We use and disclose the Personal Information we collect for our commercial and business purposes, as further described in this Privacy Notice.  These commercial and business purposes include, without limitation:

  • Our commercial purposes, including enabling commercial transactions, providing the services to you, marketing, and advertising.
  • Our business purposes as identified in the CCPA, which include:
    • Auditing related to our interactions with you;
    • Legal compliance;
    • Detecting and protecting against security incidents, fraud, and illegal activity;
    • Debugging;
    • Performing services (for us or our service provider) such as account servicing, processing orders and payments, and analytics;
    • Marketing
    • Internal research for technological improvement;
    • Internal operations;
    • Activities to maintain and improve our services; and
    • Other one-time uses.

We may disclose the categories of Personal Information designated above to the categories of third parties listed below for business purposes:

  • Service providers;
  • Government entities;
  • Advertising networks;
  • Internet service providers;
  • Data analytics providers;
  • Operating systems and platforms; and
  • Social networks.

Your Rights Regarding Personal Information. California residents have certain rights with respect to the Personal Information collected by businesses.  If you are a California resident, you may exercise the following rights regarding your Personal Information, subject to certain exceptions and limitations:

  • The right to know the categories and specific pieces of Personal Information we collect, use, disclose, and sell about you, the categories of sources from which we collected your Personal Information, our purposes for collecting or selling your Personal Information, the categories of your Personal Information that we have either sold or disclosed for a business purpose, and the categories of third parties with which we have shared Personal Information;
  • The right to request that we delete the Personal Information we have collected from you or maintain about you.
  • The right not to receive discriminatory treatment for the exercise of the privacy rights conferred by the CCPA.

To exercise any of the above rights, please contact us using the following information and submit the required verifying information, as further described below:

Verification Process and Required Information. Please note that we will require sufficient information for us to identify records responsive to your request. We may, after receiving your request, require additional information from you in order to honor the request.

Authorized Agent. If you use an authorized agent, we will require that the agent demonstrate that they are registered with the California secretary of state and have the authority to act on your behalf.

Contact Us:  If you have questions or comments about this Privacy Notice, please contact us as follows:

By mail at DPO@xlrn.com

Toll-free at 1-833-222-4129


Acceleron Pharma, Inc., Website Data Protection Notice for Visitors from the European Economic Union, United Kingdom, and Switzerland

Date Updated:  January 31, 2021

About this Notice:  This European Union General Data Protection Regulation Data Protection Notice (“GDPR Notice” or “Notice”) explains how Acceleron Pharma, Inc. (“Acceleron Pharma”, “we”, “us”, or “our”) collects, uses, discloses, and otherwise processes Personal Data about you when you access or use our website located at http://acceleronpharma.com/, and any other website or application owned and operated by Acceleron Pharma and its affiliates that links to this GDPR Notice (collectively, the “Site”).  This document describes how Acceleron Pharma handles and protects that information, and the rights and choices available to you with respect to such information.  For purposes of this GDPR Notice, “Personal Data” means information relating to an identified or identifiable natural person.

This Notice may be amended from time to time to comply with changes in the law or our business practices.  We encourage you to review this GDPR Notice regularly and check the date on which the Notice was last updated.    

About Us and How to Contact Us:  Acceleron Pharma is a global pharmaceutical company with operations in the United States, the EEA and globally.  Acceleron makes decisions on how your information is used and disclosed and shall be responsible as a ‘controller’ for ensuring that the GDPR is followed and your Personal Data are kept secured and used lawfully.  Where required by law, Acceleron Pharma has appointed representatives to fulfill its obligations under the GDPR.  For information on our representatives, or to exercise your rights or make requests concerning the processing of your Personal Data, please contact us at:

Acceleron Pharma, Inc.

Attention: Privacy Department

128 Sidney Street

Cambridge, MA 02139, United States

Acceleron Pharma’s Data Protection Officer (“DPO”): Our DPO may be contacted at: DPO@xlrn.com or at the mailing address above.

Purposes of Processing:  Acceleron Pharma may use your Personal Data for the following purposes: (i) to conduct legitimate business activities; (ii) to contact you or your company to provide information, products, or services; (ii) to provide support for, promote, and improve the Site and Acceleron Pharma offerings; (iv) to customize the Site to provide content most relevant to you; (v) to compare information for accuracy and to verify our records; (vi) to detect, investigate, and prevent activities that may violate our policies or rules or that may be otherwise illegal; or (vii) to comply with legal obligations.  

Acceleron Pharma may also use the information to communicate with you, in instances such as: (i) when we make changes to our policies; (ii) to respond to your inquiries; (iii) to contact you about your account; or (iv) to send you or your company information about promotions, offerings, and other marketing materials.

Types of Personal Data We Collect and Use:  When you engage in certain activities on the Site, such as participating in surveys, contacting customer service, providing feedback, or signing up for email updates or other promotional materials, we may ask you to provide Personal Data about yourself.  Such Personal Data may include your name, e-mail address, telephone number, company name, company information, as well as other contact information.  In addition, Acceleron Pharma collects information from Site visitors such as what Acceleron Pharma web pages you access, how often you access them, the date, time, and duration of your use of the Site, your Internet Protocol (IP) address and/or domain name, from which website you entered the Acceleron Pharma website, and your mobile carrier and/or Internet Service Provider (ISP).  We may also gather information through the use of “cookies” as described below.

Use of Cookies and Other Technologies:  Some pages on the Acceleron Pharma Site use “cookies,” or a small text file that can be stored on your device when you interact with our Site, for purposes such as identification.  Your web browser may be programmed not to accept “cookies” or it may allow you to be notified when you are receiving a “cookie,” thus giving you the option of accepting it or rejecting it.  You are free to decline our cookies if your browser permits but doing so may interfere with your use of our Site.  

Additionally, we and our third-party service providers may also use technologies similar to cookies to track your interaction with the Site.  Some of these technologies may include web beacons, pixels, tags, web server logs, geo-location technologies, and Flash objects.  As with cookies, you may decline such technologies if your browser permits.  You should refer to your browser’s instructions to remove cached history and images from your device.  

Google Analytics:  The Site may use Google Analytics to analyze traffic.  You can find out more information about Google Analytics cookies here:  https://developers.google.com/analytics/devguides/collection/analyticsjs/cookie-usage.  To opt-out of Google Analytics relating to your use of the Site, you can download and install a Browser Plugin available via this link: https://tools.google.com/dlpage/gaoptout?hl=en.

Acceleron Pharma and the third parties who assist it in operating the Site do not respond differently or limit their practices under the terms of this Notice when you access those online services with a browser that uses a Do Not Track signal or similar mechanism. 

Legal Basis for Lawfully Using Your Personal Data:  Acceleron Pharma lawfully processes your Personal Data and relies on one or more of the following bases:

  • Your consent
  • To negotiate, execute, or perform a contract with you
  • To comply with a legal obligation that applies to Acceleron Pharma
  • To carry out tasks for the public interest, which may include clinical research
  • For our legitimate business interests only where it does not override the rights or freedoms of individuals whose Personal Data we are using

Our Legitimate Interests:  Acceleron Pharma may lawfully process your Personal Data by relying on performing our legitimate interests.  This includes our business operations, such as data storage, technology support and services, customer service, risk solution provision, analytics, fraud prevention, legal services, and marketing services.  We will only use your Personal Data under this basis as long as your rights or freedoms are not overridden by our legitimate interest.  

Who We Share Your Personal Data With:  We may share your Personal Data with our employees, agents, affiliates, or representatives or service providers acting on our behalf, all of whom are under a duty of confidentiality to use your Personal Data only as necessary for the purposes it was collected for.  We may also share your Personal Data with third parties when requested by you, to fulfill a legal request or request from a regulatory authority, or as otherwise allowed or required by law.  

Sale of Your Personal Data:  Acceleron Pharma will not sell Personal Data, and Acceleron Pharma does not share Personal Data with unaffiliated third parties for their use for marketing purposes.  

Cross Border Transfers of Your Personal Data:  Acceleron Pharma is a global organization and may process your Personal Data in jurisdictions that do not provide the same standard of legal protection for your information as in your jurisdiction, raising the risk that you will not be able to enforce your rights or that recipient organizations may not be legally required to fully secure your data. 

When transferring your Personal Data to recipients in other jurisdictions, we ensure that safeguards are put in place to protect your Personal Data as required by applicable laws.  These safeguards may include entering into agreements with recipients containing Standard Data Protection Clauses that have been approved by the European Commission.

To obtain a copy of safeguards taken, please contact us at DPO@xlrn.com. 

Retention of Your Personal Data:  Acceleron Pharma will only retain your Personal Data for as long as it is needed or allowed under the purposes for which it was collected and as communicated in this GDPR Notice, whichever is longer.  The retention period may also be based on:

  • The length of time we have a relationship with you
  • The need to fulfill legal obligations to which we are subject (retention periods will vary depending on the specific legal requirements or jurisdiction).

When retention is no longer necessary or required, we will delete, anonymize, de-identify, or aggregate the Personal Data that is no longer associated with you. 

Data Security of Your Personal Data:  Acceleron Pharma implements technical, administrative, and organizational measures to help protect the security and confidentiality of your Personal Data.  Although these measures are taken to protect your Personal Data, Acceleron Pharma cannot guarantee the Personal Data we process will remain secure. 

Rights Over Your Personal Data:  Under the law, you have certain rights regarding your Personal Data.  You may have the right to request access to your Personal Data, to request correction of Personal Data that is incorrect, to withdraw consent previously given for the processing of your Personal Data (withdrawal of consent will not affect the lawfulness of processing before your withdrawal), to object to how your information is being handled, to request deletion of your data, to restrict aspects of the processing of your information, or to ask for a copy of your data to be provided to you or a third party in a digital format (where appropriate). 

Please make your request at DPO@xlrn.com.  We may need to verify your identity before fulfilling your request.  

Please note:  If you are a clinical trial participant, please contact the study doctor or site where your trial is being carried out, and they will work with Acceleron Pharma to answer any questions you have regarding your Personal Data.  Acceleron Pharma only holds key coded or pseudonymized Personal Data that cannot be used to directly identify you, and we must work with the study site to fulfill your request over your Personal Data.    

Filing a Complaint with a Supervisory Authority:  You also have the right to complain about how we handle your Personal Data to a supervisory authority that is responsible for enforcing data protection law.  A list of European Union supervisory authorities is available here: 

http://ec.europa.eu/justice/data-protection/article-29/structure/data-protection-authorities/index_en.htm

Reasons for Providing Us your Personal Data:  For this Site, you are only obligated to provide us with your Personal Data if you would like us to fulfill a service, such as participating in a survey, contacting customer service, providing feedback, or signing up for email updates or other promotional materials.  If you do not provide us Personal Data that is needed for these services, we may not be able to provide such services to you.